The Land of Denial and other personal things

I finished the book this morning, The Orphan Train.  I found it awesome that the story begins in Kinvara, the little seaside town in Ireland where my dear man was born and raised.
Not only could I not put it down, but when it was over, I felt like a good friend had left(:  I think that for sure I will try to find something else by the same author.

I have been on vacation for awhile...my favorite spot...the Land of Denial..!!!  So comfy and warm and safe.  Tonight Mr. O'Quilts and I had a date!!  It is an unusual thing as he is fatigued a lot.  We went in our wheelchair van to the ALS support group to be with friends and share ideas.

We both like to go, it is a once a month deal.

However, how to handle feeding tubes and breathing machines,etc is sobering. My vacation to the Land of Denial...ended abruptly as it often does.

Tonight there was a older lady (probably my age..) who came in a special transportation bus to our group.  She said that the bus driver drove roughly leaving her in discomfort and pain. It was sad.
 I am grateful that we could afford a used wheelchair van and that one of my best friends is a car mechanic who found it for us.  My friend at the meeting also had to take a city bus to the dentist and she fell out of the wheelchair when the bus rounded the corner too fast.  OMG

I am having to  learn how to softly turn corners and go over bumps.  Mr. O'Quilts is loosing his diaphragm muscle strength which affects his talking, his eating and staying upright when I go around curves in the van.  Soon it will affect his breathing.  I learned tonight that ALS is just one of about 46 common types of Muscular Dystrophy.  There are more uncommon ones.  We have entered a new world.

 I know well that this is not a blog about illness...etc etc etc.  However, sharing is good and so, I am.

I am only buying angel hair pasta now for the swallowing issue.  Here I am chopping it fine and bagging it for the freezer to make things easier for him to eat spaghetti with lots of sauce.

Cooking has become more challenging now that Mr. O needs special meals and the three grandchildren need food that that is easy too make...and that they will eat!!

Sooooo  TBTG I have friends like Beth and MP who have once again signed us up for Take Them a Meal.and TBTG I have friends who are signing up to make soups and foods for us...So much to be grateful for.

p.s.  My sister has now left her babysitting post..lol...The report:  one grandchild has a fever, one wet the bed, no one brushed their teeth and all camp bags are packed, lunches are ready.
 Mr.O is watching soccer....sooo  I have at least drawn the lines on the corner squares for these blocks...no sewing, but...at least...

 And, at least I have a pattern and the fabric for Lynsey's dress and doll dress.  Oh, I know I am dreaming...but it brings comfort to know that if I can, it is ready..

I do not give up...M&M's help..........................