Tuesday, October 14, 2014

Today's not so nice update

Thank you all for the wonderful wishes and messages and hugs sent my way.  It warms my heart that you all are so good to me.

I just left the hospital. 
 Mr.O'Quilts has marginal blood pressure, a very high heart rate and is struggling to breathe even with oxygen.  He has his breathing machine and wonderful nurses at the ICU. 
 I do not care.  
I  only care that he is so uncomfortable and that he is struggling so.
  His lungs and his heart are compromised as well as his body from the ALS.  His legs are paralyzed, his left arm is weak, his feeding tube is uncomfortable, his core is useless, he cannot swallow well and he whispers when he tries to talk.
It takes a strong body to fight large blood clots in both lungs.
 He no longer has that strong body.
The medication he is on does not destroy the clots, it just prevents new ones.  He refused the new meds to bust the clots because side effects can be brain bleeding.  He told the doctor that he has a terminal illness and is already paralyzed and certainly does not need a brain bleed.  So he refused and put his DNR on the table.
This new development is so sudden that I am in a fog...yes, I know...another one(:
I look at him with such love and I just cannot believe that this is the new course..
Doctors say that it is life threatening.
xxoo
at

14 comments:

  1. bethOctober 14, 2014 at 9:25 PM

    Oh, dearheart. You and your husband are so brave. Praying for wisdom, peace of mind, and the comfort of loved ones, near and far, to surround you just now.

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  2. Julia WoodOctober 14, 2014 at 9:42 PM

    You are an inspiration to all of us. Hang in there. We're all with you in spirit.

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  3. Michele BilyeuOctober 14, 2014 at 10:31 PM

    We are all surrounding you in our hearts. We all care so much and only wish it wasn't so hard on you, on him, on your family. He is doing the best he can for you and by you to the end.Bless this dear, good, and loving man.

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  4. smazoochieOctober 14, 2014 at 11:08 PM

    No words, just hugs of support & strength.

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  5. IHaveANotion ~ Kelly JacksonOctober 15, 2014 at 12:12 AM

    May Mr. O and You both be and stay in what you both know is your truth....about one another and about life.

    Definitely a time in a couples life and in a persons life that can change so many things....and ways of viewing events of these human lives. My you both find grace and be filled with gratitude that you've both had the opportunity to know and support one another...regardless of the details of the story.

    Those things in this life that are so very "real" are not only beautiful.....but extremely painful.

    I can't fix nor change a thing...and I'm too far to cook or take out your trash...and I still hold you both up....to God's Grace....may you both be blessed.

    Hugs,
    Kellly

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  6. RachaeldaisyOctober 15, 2014 at 3:30 AM

    Sending you all love and strength.

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  7. Alcea Rosea 31October 15, 2014 at 5:12 AM

    You , your husband and family are constantly in my thoughts and prayers. Big hugs coming your way.

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  8. BarbOctober 15, 2014 at 6:39 AM

    sending you support and prayers -

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  9. MaryOctober 15, 2014 at 7:57 AM

    Keeping both of you in my prayers.

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  10. ineseOctober 15, 2014 at 9:27 AM

    Diane, I am thinking of you, your husband and family.

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  11. http://thankfullga447October 15, 2014 at 9:44 AM

    Prayers to you and your family.

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  12. JulieOctober 15, 2014 at 10:59 AM

    Diane, my heart aches for you and all the O's.

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  13. mamifleurOctober 15, 2014 at 3:14 PM

    I think to you ! Friendship Mamifleur

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  14. SharonOctober 16, 2014 at 2:23 AM

    My thoughts and prayers are with both you and your husband, and your family. I wish I could do more for you than just send virtual hugs, but alas, I'm too far away to do anything else. Know that I'm thinking of you and wishing you strength and peace.

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