Thursday night update on my Mr.O'Wonderful.
. Day two on 6th Tower, CMC main.
In his words, he is now completely
disabled.
The heart a-fib has corrected itself with the help of
medication, so the blood clots in the lungs are probably stable. He is
on Warfarin for life so that clots hopefully will not be a problem again
The main problem now is saliva build up in his mouth, thank you ALS.
The patch, the suction machine...are not helping and he wakes in the
night with the fear that he will choke
to death on his own saliva. Our poor exhausted daughter spends every
night in the hospital with him. When he calls for the nurse and the
nurse says..."May I help you?"...he cannot answer as his voice is so
impaired by ALS. Himself was never the same after the feeding tube
operation 2 weeks ago and my fear is that he will never be the same
after this onslaught of large blood clots.
ALS I hate you.
They are not considering
discharge until next week and my fear is that he will not be considered a
candidate for coming home. Then he is worried about being in the
doughnut hole for medications...ugh... He has asked for a Hospice
consult tomorrow...stay tuned!!. A HUGE thanks to my daughter and my
sister for their wonderful teamwork here. The grandchildren are doing
great...Karate belt graduation was tonight!
My skills are not in nursing, they are in advocating. Today I was quite busy, let me tell you. When my mama bear gets going...watch out. He has the best room, the best nurses...the best friends, etc. Thus it was only a two hexie day!!
Thank you so much for all your comments the past two days. My blogging friendships meant the world to me.
