Monday, February 23, 2015

Truth or Story??


The patient is stable, but the caregiver wheezes away....more asthmatic bronchitis from stress interfering with stamina...so that is it...
Here we have the great present that came last week from Laurel in Texas..
 She somehow picked up on the fact that I am a fabric freak..so she sent this fabric hanging from her book store.
 I love it, especially the cat:) And below...tons of books for the children...
Lynsey especially is pleased that we do not have to take them back to the library.
Thank you Laurel..mucho!!
 Now, sick or not sick, we are not messing with birthdays...Lynsey's, and Dylan's and Stephanie's..all within days of each other...so...here we go..a group party! 
 Emi-Lou's cafe was open with totally from scratch cakes...so yummy. 
 Because I come from an overindulgent mother...there were three cakes...we love to party!!
Cannot leave out Granddaddy...
  Esthetically, I am not sure I even like this quilt any more. 
 That's what I get for using only one line and not being able to think
..It is not coming out as I planned...So I am messing with it. 
 I have decided that it is my quilt of strength..or the strength that I am hoping for..
Somehow like a baby comes from the stork...I watch the sky for courage.....Cotton and Steel.

.I am not crazy about the Top Hat blue border...but I just might do it anyway--Just because I can..
Hmmm and put on a colorful binding...I had planned on somber..just cannot do somber.
Or, maybe I should just bind the quilt with it as it is....
Funny how what we start with and what we end with can be so different!  In quilts as in life.
My girl ordered a sale layer cake from Missouri Star for the bicycles...she gave lucky me the houses:)
And last but not least, the cartoon from Muggs so well suited for me:
These past few days, my litany of woes grew longer and longer till I could not see the light. 
That I would get sick again was more than I could bare. 
 I decided not to share my blah blah blah with the entire world when I was so stuck.
Finally,..a better day.
My man is  planning to go to the ALS clinic on Friday for the first time since summer.As he has been bedridden for months, my main caregiver will go with us.  It will take two people besides me to get him out of the bed in the Hoyer lift, bring the Trilogy machine and the suction machine, his toileting and formula for his feeding tube...then help him drive his power wheelchair into our wheelchair van.  He now probably needs to have his head and chest belted as his core has weakened so. We will drive 30 minutes uptown Charlotte where we will see about 10 ALS specialists in a period of 6 hours..if he can last that long...He has such fatigue. We really need my sister to come with us, but someone the kids know, has to meet the school buses on Friday afternoon in case we are not back in time...
I think it will be quite a nightmare...I am anticipating total exhaustion for us all..
But who am I to say??  Stay in the day, girl...
.In preparation for this clinic, Himself had to fill out a check list..
I asked him the questions: Check what applies:
Are you...
Mostly happy, mostly down/depressed/hopeless/ more sad/ do you have loss of interest/pleasure in activities/ crabby/grumpy, irritable/angry/worried/anxious/crying/difficulty coping....etc..
.He answered: I am mostly happy...
 OMG  Let me tell you  I could have checked way more boxes just being me!!!! 
And, I am the caregiver and do not have ALS

Finally from newly 6 year old Lynsey:
Grandma, Aunt Emily thinks you  are fat, but I do not...I think you are perfect....but...
Grandma..if it were Thanksgiving and you were a turkey...you would be dead.
That is because they always take the fattest ones first..
xxoo


7 comments:

smazoochie said...

Dearest darling. Love your Muggs for the cartoon, love your Texas fabric, love your little Lindsey for who she is, love your Man for who he is. Lastly, certainly not leastly, love you for always being Yourself -- all your Cotton and Steel, you are YOU.

Rachaeldaisy said...

Oh my! Ive been rolling on the floor laughing so much at that last bit. Fancy saying if you were a turkey...
I think there is always a point when making a quilt that it doesn't quite look right but they turn out right in the end. It looks wonderful to me, all that cotton and steel. The more cakes the merrier!! It's good to hear Mr is mostly happy. I hope your astma gets better and stays away.

Ellen Guerrant said...

Thinking of you, dear heart. Hugs and kisses.

Ellen.

Bridget said...

Lynsey is funny.....kids have no filter, do they? PS-Yes...Live in the day. It's the best way to cope.

ES said...

Well Lynsey made me actually laugh out loud!! ha! kids really do say the funniest things! I think your quilt top is looking fab! I am sorry to hear that you have been ill though, that is no fun at all. I made a wonky fabric basket today, maybe I can store wonky things in it!!?? Anyway I am glad you have posted, if there had been no blog update today I would have been panicking :) xx

Alcea Rosea 31 said...

I hope you are feeling better, I love the cakes. I'm not a fan of cotton and steel but I love your pattern. The cartoon is perfect. I think you need an extra packet of M & M's for Friday night.
Hugs

earthwalker quilts said...

Stay in the day....stay in the moment. One foot in front of the other. A friend of mine during times of duress would call out "Courage brother, do not stumble".....Love your quilt, your words and may Lynsey, never lose her ability to speak her truth with love. Love, light and peace from the land of Aus.