The last day of 2014 brings our Evan learning to sew. At nine and a half, he has been begging me to teach him.
As I have no patience, I had thought of hiring it out...I did not have to.
He was a first rate sewist from the get go. He had not looked at this machine before, yet he had it threaded and plugged in before I even got into the room. He had his right shoe off...ha ha...I always sew barefoot. I put the speed on slow and off he went. I helped him with the first one and part of the second..When I left to attend to Granddaddy, he had done several more by himself..I am so so proud.!!!
Picture fuzzy, but not the boy...ironing his strips toward the center block, spray starch and all.
I have had these charms cut out for him for awhile, knowing he was interested.
My original intention was a disappearing nine-patch..hence the red middles.
Now, I am thinking for a beginner's success, a plain nine patch should do...
It is for his own bed...all action characters..
In other less happy news...things with my dear man are stressful. As he declines, his care is takes much more energy and focus. We are all burned out. Although the caregivers are excellent, today we had a no- can- come- last minute deal with no replacement for the holiday tomorrow.
The detail and time it takes to care for the Mr. is extensive, and getting worse.
He needs the cough assist more...I am training Evan for that too.
There is a lot I cannot do with my back and arthritis. He needs massages for his dead muscles, toileting, range of motion exercises...as he looses weight, he needs repositioning for comfort...that I cannot do.
His Trilogy machine must be put on just so, etc.
The emotional part of this is devastating for the entire family. We really need a few days away in respite, but that will not happen. We need more caregivers who care and are responsible. We need me getting braver. I was helping my sister tonight at 11 with toileting and all that comes with that and I started to feel dizzy. I decided that a beer and blogging would help..and so it did.
Cousin Ann is still here, but she leaves on Friday. She has been so great helping with the kids and even putting on the Trilogy mask.
We need a respite CNA that we can trust. It is going to get worse and I do not know what we are going to do. If it were morning I would say celebrate the positive and one day at a time. But this post is going out as the last post of 2014 and it is 11:41 pm...so I am probably doing a negative whining thing
...It still feels good to get it out...
A New Year is like a new baby...there is hope for the future and something to look forward to. I know that there is no cure for ALS...but there are other things in life that can be happy and uplifting...
So Happy New Year to that part...to hope and appreciation...to friendship and love.
A Very Goodbye to 2014 and a Very Welcome to 2015