The morning's gratitude. I got up at 6 for the 4 year old's bus which was 45 minutes late...but the kids were dancing to music in the car and I just had to laugh. A few minutes later, I was back to the bus stop with the other two grands for their 7:20 bus. The crisp autumn air with mist and color...how could a person not feel wonder. Back to check on the Mr. sleeping peacefully in his bed and back to bed myself..a rainy autumn morning, perfect for another snooze.
That was yesterday, this is today.
Still good. Update on my dear man is called plateau...mostly. ALS does that. It plateaus and then it crashes and then it plateaus at a new not so nice level. That is where we are at now...However, I noticed that when the Mr. lifted the cup with his right hand...the only functional limb... his hand shook.
What is that about...like what is any of this about.
Deliveries from the UPS truck and the Fed Ex truck are constantly at our door.
No, no more exciting fabric arrivals..instead, Hospice supplies.
What..what was that...OMG Really...did UPS enclose red wine and M&Ms with the feeding tube masks..Really...? (pen inserted into hole on keyboard for question mark)
Lucky me.
Tonight Charlotte will have 18 degree F temperatures. We have covered the outdoor faucets so the pipes do not freeze. This weather in Charlotte is a really big deal.
I really want to go to a retreat. Now is not the time, but that doesn't mean that I do not want to go. I also want to go to Target..It is all the same.
My man wants all the room doors open now. He feels quite claustrophobic as he can no longer move his limbs and is so dependent on others.
He never complains...
I, not only complain, but I publish it for all the world to see....
We are quite a team, are we not!!!!!
That was yesterday, this is today.
Still good. Update on my dear man is called plateau...mostly. ALS does that. It plateaus and then it crashes and then it plateaus at a new not so nice level. That is where we are at now...However, I noticed that when the Mr. lifted the cup with his right hand...the only functional limb... his hand shook.
What is that about...like what is any of this about.
Deliveries from the UPS truck and the Fed Ex truck are constantly at our door.
No, no more exciting fabric arrivals..instead, Hospice supplies.
What..what was that...OMG Really...did UPS enclose red wine and M&Ms with the feeding tube masks..Really...? (pen inserted into hole on keyboard for question mark)
Lucky me.
Tonight Charlotte will have 18 degree F temperatures. We have covered the outdoor faucets so the pipes do not freeze. This weather in Charlotte is a really big deal.
I really want to go to a retreat. Now is not the time, but that doesn't mean that I do not want to go. I also want to go to Target..It is all the same.
My man wants all the room doors open now. He feels quite claustrophobic as he can no longer move his limbs and is so dependent on others.
He never complains...
I, not only complain, but I publish it for all the world to see....
We are quite a team, are we not!!!!!
Now, really how could Mr.O'Quilts not just love the new pink bird pillowcases I made him...just for his comfort. The CNAs are rolling their eyes...but my man just smiles
