In polite company talking about money is so not okay.
I am way past polite company at this point!!
Even though my dear man has saved for his retirement and we are debt free, we are at great risk with a catastrophic illness.
Getting my politics up again...again.
Just FYI
In America, Democrats, Republicans and Independents alike get ALS, Parkinson's Disease...etc..So in the government, working hard on legislation for catastrophic illness would be much better than all the infighting for control.
Whew...I got it out...again.., just sayin'.
Friday's update:
Depression. Himself is now sick of being sick.
He is depressed, anxious, sad, scared and claustrophobic.
I cannot wait to get him home for some non institutional TLC.
We are ordering a batch of Prozac or Lexipro...ok..how about a very large family bottle!!
(but I do prefer vino tinto)
Today I found out that Ensure complete along with Benecalorie...(formula for his feeding tube) is costing us $420 a month for his feeding alone. Medicare will cover the Ensure through Hospice, but the extra is $180 on us. He is loosing weight like crazy so the Benecalorie is important for him to live.
We have now hired a CNA for $16 an hour...He will come 4 hours a day for $64 a day for 30 days is....$1920 a month. We may need him more.
Now I just buried my mother 5 months ago....and as you know for 12 years, she paid $5000 a month for her care...every bit of the sale of her house...and every penny she had. That is more than 1/2 a million dollars!!!!
She died just in time to be out of money...
WHY am I going on so?????
Not that we are destitute and need money...BUT for all to know.
I didn't know all this before it happened to us. Education is important...but then, maybe I still would not have paid attention to the money.
I totally have my Mama Bear up...I love advocating!!! Mr.O will have the best, believe me.
But why should I have to fight for the human dignity when ALS is already enough.
Whew...I am a mess here...so. since my organic daughter is visiting her man working in Minneapolis...well I just decided to indulge!!!!!
I so love my support system..You all..
and....chocolate ice cream in a waffle cone with chocolate sprinkles!!
