The Hospice nurse wants my beloved to be turned in his hospital bed every 2 to 3 hours to prevent skin breakdown. So I got a king sized pillow to help support that process.
What does a quilter do in this... case??
She makes a new pillowcase from IKEA fabric:)
Well...ha ha...and interesting..Barbara Brackman treated us yesterday with her.
Very interesting post on antique quilts gone wrong:)
And, I think that this is a James Joyce quote:
"Fear knows it is not a welcome guest, so it takes all kinds of disguises."
In our case, I think the main disguise is exhaustion...absolute exhaustion.
Thank God for Ava and the CNA's...One of them is working away and my daughter, sister and I are sleeping away...Kids visiting relatives and it is a cold rain outside..The best for sleeping.
We cannot find a Sunday CNA.
Explained to my man that our exhaustion is not from caring for him, rather the emotional exhaustion from his illness...and if I did not care...I would not be feeling this...Nothing to do about it...just carry on.
Saturday nurse says that this is not a case of blood clots but ALS progression.
How can this be after only 16 months diagnosis??
Denial is a powerful defense...protecting the psyche from what it cannot handle.
I seem to be the only one in disbelief.
Looking everywhere for the brave wife........
"The Case of the Missing Brave Wife"!!!