Wednesday, November 19, 2014

Flannel Pillowcase Therapy..ad nauseum



The morning's gratitude.  I got up at 6 for the 4 year old's bus which was 45 minutes late...but the kids were dancing to music in the car and I just had to laugh.  A few minutes later, I was back to the bus stop with the other two grands for their 7:20 bus.  The crisp autumn air with mist and color...how could a person not feel wonder. Back to check on the Mr. sleeping peacefully in his bed and back to bed myself..a rainy autumn morning, perfect for another snooze.
That was yesterday, this is today.
Still good.  Update on my dear man is called plateau...mostly.  ALS does that.  It plateaus and then it crashes and then it plateaus at a new not so nice level.  That is where we are at now...However, I noticed that when the Mr. lifted the cup with his right hand...the only functional limb... his hand shook.
 What is that about...like what is any of this about.
Deliveries from the UPS truck and the Fed Ex truck are constantly at our door.
 No, no more exciting fabric arrivals..instead, Hospice supplies.
What..what was that...OMG  Really...did UPS  enclose red wine and M&Ms with the feeding tube masks..Really...? (pen inserted into hole on keyboard for question mark)
 Lucky me.

Tonight Charlotte will have 18 degree F temperatures.  We have covered the outdoor faucets so the pipes do not freeze.  This weather in Charlotte is a really big deal.
I really want to go to a retreat. Now is not the time, but that doesn't mean that I do not want to go.  I also want to go to Target..It is all the same.
My man wants all the room doors open now.  He feels quite claustrophobic as he can no longer move his limbs and is so dependent on others.
 He never complains...
I, not only complain, but I publish it for all the world to see....
We are quite a team, are we not!!!!!

Now, really how could Mr.O'Quilts not just love the new pink bird pillowcases I made him...just for his comfort.  The CNAs are rolling their eyes...but my man just smiles

8 comments:

beth said...

I love your bottle tree. Also, love that you are continuing to find beauty and wonder ... and create beauty in the midst of incredibly hard circumstances. Thoughts and prayers for you and your man.

Gisela Suski said...

You are the best.

Alcea Rosea 31 said...

I like the dew on spiders' webs. Strings of beautiful diamonds. Little things are the best. Making your man smile with soft pillows, excellent.
Hugs

Rachaeldaisy said...

I like the way the grandies were dacing in the car while waiting for the bus. Your un pillowcases would make anyone smile, pink bird ones look especially sweet and comfy.

Margaret said...

Complain all you want that is why you have friends especially now when there isn't always a lot this one can do but listen. Love and hugs

ES said...

Gosh I'm not sure I could get out of bed that early, to go and wait for a bus!! argh!!! Well done you deserve some m&m's just for that!!! And the red pillow case with the birds on is just great! :)

IHaveANotion ~ Kelly Jackson said...

Let them roll their eyes...they've not been in his shoes so they don't know the joy of colorful fun things being around when you are terminally ill. I love it!!!

I do wish the supplies came with tons of great wine and chocolates but I'm afraid of what all that would do to your body...I certainly know what it has done to mine!!

Keep the "complaining" coming....I'd rather hear it than have you keep all of that inside.

Hugs,
Kelly

smazoochie said...

Sweetheart, I can hardly imagine how hard it is to watch the world shrink so for someone - anyone - you love so much. For him to crave the taste if tea, to want the blinds & windows open so he doesn't feel so enclosed in his own body .... sew when you can, eat your M&Ms, a glass or 2 of wine, I believe you've earned them.