First we see the opportunist!!! While Granddaddy is away in Hospice.
O'Captain Courageous, my Dear Man is sleeping the rest of his life away in a Hospice Bed at Southminster. He continues with shallow breathing, with clearing the mucus in his mouth, and with deteriorated muscles in his digestive system causing it to be sluggish. The many large blood clots in both lungs remain. He is extremely fatigued. The ALS nurse said that any episodes (infections, blood clots, etc.) in an ALS patient cause the disease to progress more rapidly. He does not eat but the food and medication that the nurses put thru his feeding tube. During the day I sit by his side with my books and my hexies.
Oh, life what are you thinking??
Gratitude comes with my mother's Hospice friends visiting me, my sister and daughter taking up the load and friends like dear Katie. Last night Katie met the buses, took the three grands to Karate, made them dinner, did homework and put them to bed. All while Emily and I were visiting Himself. Then...she took Evan to Walmart and bought the kids shirts for neon day at school and neon hair spray...
All this does Katie plus being pretty and young and wonderful. How grateful I am for the friends that surround us.
All this does Katie plus being pretty and young and wonderful. How grateful I am for the friends that surround us.
How grateful I am for the courage that my man possesses.
xxoo
9 comments:
Wish I could do some laundry, make some soup, etc. All I can do is keep you & yours in my thoughts.
It's heartening to know you have such wonderful people around you helping and keeping you company. I'm sure Mr O is being kept comfortable as possible at the hospice. I've been sewing my hexies and when I do I think of you sewing your hexies.
I will continue to pray for strength and thanks for angels.
Diane, YOU, my dear, are amazing. Strength, hidden just below the fear and sadness. Be strong, be brave and always know how much we all admire and love YOU!
You're all in my thoughts, I am glad you are managing to post most days now, as I am sure we're all keen to stay up to date. I'm thankful you have friends and family to help out. xx
Thinking of you.
Thank goodness you have so many angels in your life. take care
Keeping you in my prayers.
Pleased to hear so many people are able to help you with the practicalities. You and your family are in my thoughts and prayers, especially your dear man.
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